About Us
We aim to promote awareness about rare diseases in Malaysia. We are committed in focusing to help rare disease warriors and their families obtain society’s acknowledgement as to the challenges and difficulties they face on a daily basis. Last but not least, we also focuses on bringing about changes in policies pertaining to rare diseases. If you share the common values and principle with us, you are more than welcomed to share this beautiful journey.
HEMASSREE
President
hemassree1@gmail.com
KISHENATHRAO
Secretary
kishenathrao@gmail.com
NG WEI
Vice President
ngwei0210@gmail.com
KESAVARAJ
Treasurer
raj.kesava@rocketmail.com