About Us

We aim to promote awareness about rare diseases in Malaysia. We are committed in focusing to help rare disease warriors and their families obtain society’s acknowledgement as to the challenges and difficulties they face on a daily basis. Last but not least, we also focuses on bringing about changes in policies pertaining to rare diseases. If you share the common values and principle with us, you are more than welcomed to share this beautiful journey.

HEMASSREE
President
hemassree1@gmail.com

KISHENATHRAO
Secretary
kishenathrao@gmail.com

NG WEI
Vice President
ngwei0210@gmail.com

KESAVARAJ
Treasurer
raj.kesava@rocketmail.com

Number of Members
40

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@rdsc_bac